SSA Adds New Medical Conditions to Compassionate Allowances List

Feb 15th, 2010 | By Sharon Shaw Elrod MSW EdD | Category: Social Security & Medicare

The Social Security Administration last week announced the addition of 38 more conditions to its list of Compassionate Allowances. The original list of 50 conditions was first posted in October 2008. Michael J. Astrue, Commissioner of Social Security, made the announcement, adding, “The addition of these new conditions expands the scope of Compassionate Allowances to a broader subgroup of conditions like early-onset Alzheimer’s disease. The expansion we are announcing today means tens of thousands of Americans with devastating disabilities will now get approved for benefits in a matter of days rather than months and years.”

The purpose of the Compassionate Allowances list is to speed approval of applications for disability benefits from the Social Security Administration. If you are diagnosed with one of the afflictions, your application for disability benefits gets rushed to the top of the list. Many medical issues qualify an individual for Social Security and Supplemental Security Income (SSI) benefits; Compassionate Allowances are a way of quickly identifying specific medical issues that clearly qualify for benefits. It allows the agency to electronically target and make speedy decisions for the most obviously disabled individuals.

A variety of national organizations were included in making decisions about which diseases would be added to the list, including the National Institutes of Health, Alzheimer’s Association, National Organization for Rare Disorders. Commissioner Astrue said the Social Security Administration would continue to hold hearings and look for additional medical conditions that can be added to the list of Compassionate Allowances.

The Social Security Administration will begin electronically identifying these 38 new conditions March 1:

  1. Alstrom Syndrome
  2. Amegakaryocytic Thrombocytopenia
  3. Ataxia Spinocerebellar
  4. Ataxia Telangiectasia
  5. Batten Disease
  6. Bilateral Retinoblastoma
  7. Cri du Chat Syndrome
  8. Degos Disease
  9. Early-Onset Alzheimer’s Disease
  10. Edwards Syndrome
  11. Fibrodysplasia Ossificans Progressiva
  12. Fukuyama Congenital Muscular Dystrophy
  13. Glutaric Acidemia Type II
  14. Hemophagocytic Lymphohistiocytosis (HLH), Familial Type
  15. Hurler Syndrome, Type IH
  16. Hunter Syndrome, Type II
  17. Idiopathic Pulmonary Fibrosis
  18. Junctional Epidermolysis Bullosa, Lethal Type
  19. Late Infantile Neuronal Ceroid Lipofuscinoses
  20. Leigh’s Disease
  21. Maple Syrup Urine Disease
  22. Merosin Deficient Congenital Muscular Dystrophy
  23. Mixed Dementia
  24. Mucosal Malignant Melanoma
  25. Neonatal Adrenoleukodystrophy
  26. Neuronal Ceroid Lipofuscinoses, Infantile Type
  27. Niemann-Pick Type C
  28. Patau Syndrome
  29. Primary Progressive Aphasia
  30. Progressive Multifocal Leukoencephalopathy
  31. Sanfilippo Syndrome
  32. Subacute Sclerosis Panencephalitis
  33. Tay Sachs Disease
  34. Thanatophoric Dysplasia, Type 1
  35. Ullrich Congenital Muscular Dystrophy
  36. Walker Warburg Syndrome
  37. Wolman Disease
  38. Zellweger Syndrome


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